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When You Can't Be the Primary Caregiver

Updated January 2026 · 12 min read

You want to be there for your aging parent, but life has made it impossible to be their primary caregiver. Maybe you live far away. Maybe your own health is compromised. Maybe work or children or your spouse needs you. The guilt is crushing—but you can still make a meaningful difference.

Valid Reasons You Can't Be Primary Caregiver

You don't need to justify why you can't provide daily hands-on care. These are all legitimate reasons:

Distance

You live hours or states away. Moving isn't realistic due to your job, your partner's job, your children's schools, or established support systems where you are.

Your Own Health

You have chronic illness, disability, mental health challenges, or physical limitations that make caregiving dangerous for you or inadequate for your parent.

Work/Financial Obligations

You can't quit your job or go part-time. You're the breadwinner. You don't have savings to live on. Your family depends on your income.

Your Own Family

You have young children, a spouse who needs you, or other family members who depend on you. You can't abandon these responsibilities.

Relationship History

Your parent was abusive, neglectful, or harmful. You've set necessary boundaries for your mental health. Being their caregiver would be damaging to you.

Lack of Caregiving Skills

Medical tasks, dementia care, or physical assistance may be beyond your abilities. Professional caregivers can provide better, safer care.

Permission to Not Be Primary Caregiver You are not a bad child for having limitations. You are not selfish for having your own life. You cannot pour from an empty cup. Recognizing your limits is mature, not shameful.

Ways to Contribute From a Distance

Not being primary caregiver doesn't mean doing nothing. You can make a real difference with these contributions:

Financial Support

Help pay for professional caregivers, medication, equipment, or facility costs. Money lets others do what you can't.

Care Coordination

Research options, make calls, schedule appointments, manage paperwork. This is exhausting work that can be done remotely.

Administrative Tasks

Handle insurance claims, medical bills, Medicaid applications, legal documents. These tasks don't require physical presence.

Technology Setup

Set up video calling, medication reminders, medical alert systems, smart home devices to help your parent stay safe.

Regular Check-Ins

Daily or weekly calls provide emotional support and let you monitor changes. Virtual presence matters.

Respite for Primary Caregiver

Pay for the sibling or other caregiver to take breaks. Cover respite care costs so they don't burn out.

Strategic Visits

Time your visits for doctor appointments, facility tours, or to give the primary caregiver a vacation.

Emotional Support

Be a sounding board for the primary caregiver. Listen without judgment. Acknowledge their sacrifice.

Having the Conversation with Siblings

If a sibling is the primary caregiver, you need to have an honest conversation:

  1. Acknowledge their burden - "I know you're carrying most of this. That's not fair, and I see it."
  2. Explain your limitations - Be specific about why you can't do more, without over-apologizing
  3. Offer specific contributions - "Here's what I can do" is more useful than "Let me know how I can help"
  4. Follow through - If you promise to handle something, do it. Reliability builds trust.
  5. Check in regularly - Ask how they're doing, not just how your parent is
Fair Doesn't Mean Equal Fair contribution doesn't mean everyone does the same thing. The sibling nearby does hands-on care; the distant sibling contributes money or coordination. Different contributions can be equally valuable.

Managing the Guilt

Guilt is the constant companion of long-distance or limited caregivers. Here's how to manage it:

Recognize Unhelpful Guilt

Guilt is only useful if it motivates change you can actually make. If you've done what's possible given your constraints, continuing to feel guilty only hurts you without helping anyone.

Focus on What You CAN Do

Instead of ruminating on what you're not doing, pour energy into the contributions you can make. Action reduces guilt better than self-flagellation.

Set Realistic Expectations

You cannot be in two places at once. You cannot save everyone. You cannot be a perfect child, perfect spouse, perfect parent, and perfect employee simultaneously. Accept human limitations.

Stop Comparing

Your sibling who moved Mom in has different circumstances than you. Comparing only breeds resentment and shame. Each person contributes what they can.

Get Support

Caregiver support groups welcome long-distance caregivers too. Therapy can help process guilt. You need somewhere to express these feelings without judgment.

When Siblings Resent You

The sibling doing daily care may resent your "freedom." This is understandable—and painful.

When You're the Only Child

Without siblings to share the load, you must build a care team:

A geriatric care manager (aging life care professional) is particularly valuable for only children. They serve as your local eyes and ears, attend appointments, coordinate services, and call you when something's wrong.

Making Visits Count

When you can visit, maximize the impact:

  1. Coordinate with doctors - Schedule appointments during your visit
  2. Give the primary caregiver a break - Let them leave while you're there
  3. Handle practical tasks - Organize paperwork, clean, do home maintenance
  4. Assess the situation - Look for changes you can't see on video calls
  5. Research local resources - Tour facilities, meet care providers in person
  6. Spend quality time - Not just logistics—actual connection with your parent

When Facility Care Becomes Necessary

If your parent needs more care than can be provided at home and no family member can step up, a care facility may be the best option. This isn't failure—it's ensuring they get the care they need.

Facility Care Isn't Abandonment Choosing professional care is sometimes the most loving choice. Your parent deserves 24/7 skilled care. You can provide love and advocacy while professionals provide physical care.

Taking Care of Yourself

Even non-primary caregivers experience caregiver stress. The worry, guilt, family conflict, and grief of watching your parent decline all take a toll.

Coordinate Care Effectively

Our caregiver resources include tools for managing care from a distance and coordinating with family members.

View Caregiver Resources